Relapsing Polychondritis, RP Video

Relapsing Polychondritis, RP Video Trailer has been released.

The short 40 second trailer showcases a woman’s experience with Relapsing Polychondritis and sets the stage for an  in depth look into life with Relapsing Ploychondritis. The woman in the video, Nancy explains what is Relapsing Polychrondritis and what is the treatment for Relapsing Polychondritis.

http://www.rptherideofmylife.org

Relapsing Polychondritis Video Link is Below: http://www.rptherideofmylife.org

The Relapsing Polychondritis Awareness and Support Foundation, RPASF sent me an email and suggested the sharing of this RP video may it easier for others to understand our world of Relapsing Polychondritis. Here is their email and link to Relapsing Polychondritis Video (When you click on the link it will take you to a video with a bicycle as a thumbnail. Click on the bicycle.) :

Public Release of “RP – The Ride of My Life” Trailer Awakening the World to Our RP Challenges

If you have seen this announcement before, read on, because it’s time to spread the word! If you have not, please read this in its entirety.

Please feel free to share this trailer with your family, friends, colleagues and on social media everywhere, especially to those who have difficulty understanding what it is like living with such a disease.

The Relapsing Polychondritis Awareness and Support Foundation (“RPASF”) is pleased to announce a gift to the Autoimmune and Rare Disease Communities in their entirety: a twenty minute professionally-produced video documentary titled “RP – The Ride of My Life”.

Below is a link to the trailer to this important and revealing video, which has been donated by a special RP friend (patient; survivor). Home – A Video Documentary “RP The Ride of My Life”

Home – A Video Documentary “RP The Ride of My Life… RPASF is proud to announce the coming of a story of living a life with purpose while suffering from the rare disease Relapsing Polychondritis   View on http://www.rptherideofmylife.org

We encourage you to watch the trailer to get a glimpse of what RPASF believes will be a most helpful tool as we work to further our mission, including:

• Advocating increased awareness and support for persons affected by RP; and
• Educating the general public and medical communities about RP and rare diseases as a whole.

Soon, we will be able to share the entire video with you, your families and friends, doctors, researchers – and the wide world of rare disease and its advocacy.

We are planning an event to release the video, which we hope will be beneficial to not only you but your caregivers as well. Hopefully the perspective of RP and other rare diseases will change along with how our disease is seen by the world at large.
On behalf of RPASF, we thank Nancy who made this video available to us and salute her for her generosity and courage to share her RP story.

Please enjoy the trailer and envision a large, open door to lead us on our journey together to awaken the world!

Your Team at RPASF

You can read more about HypoGal and Relapsing Polychondritis, HERE.

 

 

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