Posts Tagged ‘RARE DISEASE DAY’

Rare Disease Showcased With Rare Patient Voice

  RARE PATIENT VOICE    Do you or someone you care for have a rare disease? If so, then please become part of the Rare Patient Voice referral program. Rare Patient Voice connects patients and caregivers with confidential research studies and surveys. Rare Patient Voice pays participants on a $100 an hour pay scale. You…

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The Evolution of Rare Disease Day

rare disease day 2018

    The Evolution of Rare Disease Day   Today, February 28th is Rare Disease Day and the evolution of rare disease day continues to amplify.  What Is Rare Disease Day? The purpose of Rare Disease Day is to raise awareness for rare diseases. Hopefully, increased awareness will improve access to treatment and medical representation…

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Rare Disease Day February 29, 2016

Rare Disease Day 2016

Rare Disease Day February 29, 2016 Today February 29, 2016 is Rare Disease Day in the United States Thank You Rare Disease Organization for making this day happen 🙂 The Rare Disease Organization states on their website that Rare Disease Day takes place on the last day of February each year. The main objective of Rare…

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