Posts Tagged ‘Relapsing Polychondritis’

Rare Disease Showcased With Rare Patient Voice

  RARE PATIENT VOICE    Do you or someone you care for have a rare disease? If so, then please become part of the Rare Patient Voice referral program. Rare Patient Voice connects patients and caregivers with confidential research studies and surveys. Rare Patient Voice pays participants on a $100 an hour pay scale. You…

Read More

Share Your Relapsing Polychondritis Support By Sharing Red Ear Awareness

show relapsing polychondritis support group

Share Your Relapsing Polychondritis Support By Sharing Red Ear Awareness           Please help those with Relapsing Polychondritis by playing this Relapsing Polychondritis Support information forward.      You may find these weblinks on Relapsing Polychondritis helpful: What Is Relapsing Polychondritis?  All About Relapsing Polychondritis If you are looking for discounts or…

Read More

I am the National Institutes Of Health Relapsing Polychondritis Patient 34

National Institutes Of Health Clinical Trial My Story

  I am the National Institutes of Health Relapsing Polychondritis Patient 34 Relapsing Polychondritis  The National Institutes of Health registered nurse coordinating the Relapsing Polychondritis clinical trial informs me of my Relapsing Polychondritis trial placement. Learning that I am Relapsing Polychondritis patient 34 causes my emotions to seesaw rapidly. Rare Disease Part of me feels…

Read More

About The HypoGal Blog

about hypogalblog CHRONIC ILLNES

    About The HypoGal Blog Lisa G. created the HypoGal Blog as a way to express her health challenges, share health tips, and to play it for forward. The HypoGal Blog shares everyday experiences living with a chronic illness. Lisa a.k.a. HypoGal struggles with Sheehan’s Syndrome, Relapsing Polychondritis and a gambit of other medical…

Read More

My Medical Experience At The National Institutes Of Health

National institutes of health Hypogal

My medical experience at the National Institutes Of Health confirms the rarity and complexity of Relapsing Polychondritis, the limited R.P. medical data and hope of a Relapsing Polychondritis cure. My last two days at the National Institutes Of Health are filled with; Medical appointments with different specialist Lab tests Pulmonary Function Tests Echo Cardiograph A…

Read More

My National Institutes Of Health Medical CountDown Begins

Relapsing Polychondritis My National Institutes Of Health Relapsing Polychondritis clinical trial countdown begins. Fingers crossed I will begin my first day of the Relapsing Polychondritis testing this Monday morning. For those of you that are not familiar with my HypoGal’s chronic illness medical journey; I have Relapsing Polychrondritis, Sheehan’s Syndrome and a gambit of other…

Read More