HypoGal’s My Stories
It has been over two years since I clicked away trying to win The Mayo Clinic Social Media Summit Conference Scholarship Contest.
As I reflect on the last three years I am amazed at the rapid growth of the digital world.
Every minute the Social Media world evolves, terms change, apps are created, WordPress plugins update and I struggle to keep up.
I realize Social Media has enabled me to share my experiences of living with a chronic illness and play it forward. So, in order to play it forward, I try to keep up, however, slowly.
I have to chuckle that two years ago I was not sure how to link my HypoGalBlog to my HypoGal Face Book Page, but I learned. I continue to learn and to make countless errors.
I recently, deleted, lost my entire 4 four years of HypoGalBlog blog posts. The list of all my blog posts was a very bittersweet experience, mostly bitter. The sweet part is my HypoGalBlog makeover has begun.
The lost of all my blog posts was a very bittersweet experience, mostly bitter. The sweet part is my HypoGalBlog makeover has begun.
Hopefully, the HypoGal Blog will be completely updated shortly. I have also learned that I need to have a better backup system. So, as I reminiscence about the past, I have posted the essay I submitted to The Mayo Clinic Social Media Summit Conference Scholarship Contest in August of 2011.
I have also learned that I need to have a better backup system.
So, as I reminiscence about the past, I have posted the essay I submitted to The Mayo Clinic Social Media Summit Conference Scholarship Contest in August of 2011.
Here is my Mayo Clinic Social Media Summit Conference Scholarship Contest Essay:
As I scrolled through my Face Book account, I noted that The Mayo Clinic has a Social Media Summit Conference scholarship contest.
I also noted that the deadline was August 3rd. I quickly doubled checked my calendar, yep, it was already, August 1st.
It was already after 7:00 PM and the sun had already begun its departure.
I decided, to handle the deadline challenge just like the rest of my medical ailments, move forward.
The inspirational words, Social Media was the phrase that enabled me to temporarily halt my life and begin to click away on this essay, Please, Like, Tweet and Comment this HypoGal to the Mayo Clinic Social Media Summit.
My essay title is direct and on point. My name is Lisa and on the World Wide Web, I write by the pen name, HypoGal.
I created the HypoGal web site in 2010 to expand awareness of the rare disease, Sheehan’s Syndrome.
What Is Sheehan’s Syndrome?
Sheehan’s Syndrome is a rare disease of the pituitary gland that is frequently misdiagnosed.
The pituitary gland is a burnt red, soft, oval pea sized gland that is located at the base of our brain. The pituitary gland is often referred to as the master gland.
It is referred to as the master gland because the pituitary releases hormones that control almost all of our endocrine system. The master gland (pituitary gland) sends signals to our other glands to produce hormones that regulate growth in childhood, control our metabolism, libido, fertility, emotions, sexual maturity, muscle tone and essentially make life worth celebrating.
Sheehan’s Syndrome is caused by severe blood loss during or after childbirth.
The blood loss during and post childbirth can be particularly damaging to the pituitary gland. The loss of blood to the pituitary gland may destroy hormone-producing tissue.
When necrosis of the pituitary gland occurs the pituitary may lose some or all of its function. I developed Sheehan’s Syndrome in 2002 during the arrival of my beautiful second daughter.
Immediately after her birth, my body went into Adrenal Crisis. I began to vomit, my body temperature began to lower, my blood pressure declined and I literally felt like I was hit by a bus.
I knew something was terribly wrong with my body but it would take a terrifying nine months before the diagnoses of Sheehan’s Syndrome.
This disease is rare and I was misdiagnosed numerous times. And, even when the disease is diagnosed correctly, many patients are not able to receive the proper lab testing and treatment plans necessary to help obtain a balanced life style.
And, even when the disease is diagnosed correctly, many patients are not able to receive the proper lab testing and treatment plans necessary to help obtain a balanced life style.
I was frustrated with the lack of medical information on this rare disease. I also felt extremely isolated.
I am fortunate that a very caring Endocrinologist informed me about an online Sheehan’s Syndrome Group.
It was through the help of this online support group and numerous other online tools that I was able to navigate my daily care with Sheehan’s Syndrome.
Sheehan’s Syndrome is a difficult invisible, chronic disease to manage.
My physical and emotional health would not have progressed in such a positive manner if it were not for all the caring and knowledge individuals that selflessly gave me their time.
It is with this realization that I knew others would benefit from my voice. Through my HypoGal website, HypGal Blog and Facebook
Through my HypoGal website, HypGal Blog and Facebook Page, I have been able to reach out to others who may share similar journeys.
However, I realize my Social Media skills are limited.
The Social Media Summit Conference would give me that education, guidance, and direction to empower my voice.
And, most importantly I would be able to play it forward to a much larger audience. So, please if you have FaceBook then, “Like” this link.
And, if you have a Twitter Account, then please “Tweet”.
More than ever, your Comments are absolutely needed.
Please help enable my HypoGal’s voice to echo.
You can read more about HypoGal at www.HypoGal.com.
You can read about my medical journey and experience with disability insurance on Amazon’s #1 Ranked book on Disability Insurance: HypoGal and Disability Benefits.
Please, Like HypoGal on Facebook.